A Parent's Guide to Down Syndrome

Toward a Brighter Future, Revised Edition

By Siegfried M. Pueschel, M.D., Ph.D., J.D., M.P.H., with invited contributors

For over 10 years, parents and professionals have trusted Dr. Pueschel's best-selling book on parenting children with Down syndrome — and now, they can get the latest information in his newly updated edition. Crossing the lifespan, this thorough volume highlights developmental stages and shows recent advances that can improve a child's quality of life. New topics covered include Individuals with Disabilities Education Act (IDEA) 1997 innovative services, programs, and support groups the latest prenatal genetic testing methods the impact of play on gross motor development association of Down syndrome with other disorders such as Attention-Deficit/Hyperactivity Disorder and Pervasive Developmental Disorder Written by leading experts, many of whom are parents of children with Down syndrome themselves, readers will get the advice and insight in this easy-to-read reference.

Paperback 338 pages 5-1/2 x 8-1/4 2001 

Table of Contents

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About the Authors
Acknowledgments
Introduction

From Parent to Parent
Claire D. Canning


A Brief History of Down Syndrome
Siegfried M. Pueschel


Exploring the Causes of Down Syndrome
Siegfried M. Pueschel


Prenatal Diagnosis and Genetic Counseling
Siegfried M. Pueschel


A Child with Down Syndrome is Born
Ann Murphy


Physical Features of the Child
Siegfried M. Pueschel


Medical Concerns and Health Issues
Siegfried M. Pueschel


Treatments Approaches
Siegfried M. Pueschel


What to Expect as Your Child Develops
Claire D. Canning and Siegfried M. Pueschel


Feeding the Young Child
Elizabeth Zausmer and Siegfried M. Pueschel


Early Developmental Stimulation
Elizabeth Zausmer


Stimulating the Child's Gross Motor Development
Elizabeth Zausmer


Fine Motor Skills and Play: The Road to Cognitive Learning
Elizabeth Zausmer


Raising a Child with Down Syndrome
Ann Murphy


Developing Communication Skills
DeAnna Horstmeier


Preschool and Kindergarten: A Time of Enlightenment and Achievement
Claire D. Canning


Education from Childhood Through Adolescence
H.D. Bud Fredericks


Adolescence and the Transition to Adulthood
Jean P. Edwards


Recreation: Key to a More Fulfilling Quality of Community Life
John Rynders


Working in the Community Through Supported Employment: It's All About Choices
Darlene D. Unger


Does Parenting Ever End? Experiences of Parents of Adults with Down Syndrome
Dorothy Robinson, Marty Wyngaarden Krauss, and Marsha Mailick Seltzer


Biomedical Research and the Future of Down Syndrome
Alberto C.S. Costa