Person-Centered Planning

Research, Practice, and Future Directions

Edited by Steve Holburn, Ph.D., & Peter M. Vietze, Ph.D.

"Clearly does justice to a powerful intervention that has changed the lives of people with developmental disabilities around the country.” —Valerie J. Bradley, M.A., President, Human Services Research Institute

Person-centered planning is one of today’s hottest topics in disability. In this book, over forty experts from diverse specialties — including psychology, community inclusion, and professional development — examine this innovative practice from every angle! They show you the best ways a service team can get to know an individual’s interests and dreams to help that person realize life-changing possibilities. You’ll explore concrete ways person-centered planning changes the lives of individuals with different levels of disabilities who live in various environments get detailed instructions to help you assess an individual’s preferences discover how person-centered planning can reduce challenging behavior find professional development strategies for staff adopting person-centered planning Supported by solid quantitative and qualitative research, this one-of-a-kind book gives you a complete picture of the challenges and benefits person-centered planning can bring — and equips you with creative strategies for making it work!

Paperback 464 pages / 6 x 9 2002

Table of Contents --------------------------------------------------------------------------------

About the Editors About the Contributors Foreword Beth Mount Preface Acknowledgments

I. Person-Centered Planning in Context The Origins of Person-Centered Planning: A Community of Practice Perspective Connie Lyle O’Brien and John O’Brien Person-Centered Planning and Positive Behavior Support Don Kincaid and Lise Fox The Confluence of Person-Centered Planning and Self-Determination Michael L. Wehmeyer

II. Changes in Organizational Culture Using Person-Centered Supports to Change the Culture of Large Intermediate Care Facilities Jerry A. Rea, Carolyn Martin, and Kasey Wright A Plan is Not Enough: Exploring the Development of Person-Centered Teams Helen Sanderson Overcoming the Barriers: Moving Toward a Service Model that is Conducive to Person-Centered Planning Darlene Magito-McLaughlin, Thomas R. Spinosa, and Michael D. Marsalis Lifestyle Quality and Person-Centered Support: Jeff, Janet, Stephanie and the Microboard Project Paul H. Malette

III. Preference Assessment and Program Evaluation Person-Centered Planning with People Who Have Severe Multiple Disabilities: Validated Practices and Misapplications Dennis H. Reid and Carolyn W. Green Residential Preferences in Person-Centered Planning: Empowerment Through the Self-Identification of Preferences and Their Availability Paula Davis and Gerald Faw “I Don’t Know How They Made it Happen, but They Did”: Efficacy Perceptions in Using a Person-Centered Planning Process Shelley Dumas, Denise De La Garza, Penny Seay, and Heather Becker Active Support: Planning Daily Activities and Support for People with Severe Mental Retardation David Felce, Edwin Jones, and Kathy Lowe

IV. Challenging Behavior Person-Centered Planning from a Behavioral Perspective Gregory A. Wagner A Better Life for Hal: Five Years of Person-Centered Planning and Applied Behavior Analysis Steve Holburn and Peter M. Vietze Evaluating Preferred Activities and Challenging Behavior Through Person-Centered Planning Kevin P. Klatt, Diane Bannerman Juracek, K. Renee Norman, David B. McAdam, James A. Sherman, and Jan Bowen Sheldon

V. Training and Policy Implementing Person-Centered Planning on a Statewide Basis: Leadership, Training, and Satisfaction Issues Stan Butkus, David A. Rotholz, Kathi Kelly Lacy, Brian Abery, and Sarah Elkin Realizing Individual, Organizational, and Systems Change: Lessons Learned in 15 Years of Training About Person-Centered Planning and Principles Angela Novak Amado and Marijo W. McBride Public Policy and Person-Centered Planning Michael Smull and K. Charlie Lakin Numbers and Faces: The Ethics of Person-Centered Planning John O’Brien